In a new study released on August 29, 2012, researchers from the U.S. Centers for Disease Control and Prevention said that a new “phlebovirus,” (a distant cousin to one recently identified in China,) has been identified after putting two men in the hospital in critical condition.
It is bad enough to suffer with the profound fatigue that accompanies chronic Lyme disease. People can’t understand the agony of trying to hold your head up when your body shakes with the effort.
You have to experience it to understand it, and yet those who don’t understand think (and say to us), “Oh, I know just how you feel! I get so tired sometimes I just don’t want to get out of bed – but sometimes you just have to make yourself.” (This is usually said with a staged smile as if there is actual compassion in the advice to essentially “Get off your rear end and get going!” Continue reading
U.S. Sen. Kristen Gillibrand, D-N.Y., and Blumenthal are co-sponsoring legislation that would establish a federal advisory committee on Lyme issues, consider a uniform reporting system and boost educational and research efforts to limit the disease spread’s and better treat patients.
On August 30, 2012, the US Senators held a hearing at the University of Connecticut Stamford where over 200 peple attended with many sharing heartbreaking stories of their personal experience with chronic Lyme disease. Continue reading
For years, insurance has been withholding treatment for chronic Lyme disease (or even re-treatment after a short course of antibiotics doesn’t work) based on four studies that were conducted in 2001.
Two of the most influential were conducted by Mark Klempner, PhD and published in the New England Journal of Science: “Two controlled trials of antibiotic treatment in patients with persistent symptoms and a history of Lyme disease” New England Journal of Medicine, 2001. 345(2):85-92. Klempner, M. S., Hu, L. T., Evans, J., Schmid, C. H., Johnson, G. M., Trevino, R. P., Norton, D., Levy, L., Wall, D., McCall, J., Kosinski, M., Weinstein, A.] See studies here.
Note: Dr. Klempner was soon thereafter hired as Associate Editor of New England Journal of Health. Hmmm Continue reading
The following article was excerpted From the Writings of Dietrich Klinghardt, MD, Ph.D., edited by Eve Greenberg, LPC, CN, Explore Staff Reporter and Director of the Klinghardt Academy of Neurobiology published by Dr. Mercola. Dr. Klinghardt’s has vast experience with Borrelia burgdorferi through his research and professional practice, and he enjoys a highly regarded reputation that reaches between continents and is presented through workshops and lectures around the world. Continue reading
One of our readers was kind enough to pass on information about a company paying up to $400 per plasma donation from people who are positively diagnosed with Lyme disease.
At first I thought it was a scam and almost deleted the comment but thankfully I checked it out first. Continue reading
Finally a test we can rely on to diagnose Lyme disease!
As of August 1, 2012, Advanced Laboratory Services (photo credit) has a new diagnostic test for Lyme disease that was developed with the help (as a consultant NOT owner, stockholder or sales rep) of Dr. Joseph Burrascano. Continue reading
A shift in media attention to chronic Lyme can be seen as major national news publications are beginning to report on research concerning chronic Lyme disease rather than just disputing the condition with blanket denials from the IDSA.
For instance, the Wall Street Journal reported on July 3oth (2012) on significant evidence proving the existence of chronic Lyme (at least in mice.) Continue reading
When I first wrote about the Bionic 880, it was a relatively new technology – a photon therapy device, that had claims of 96% cure-rate for people with Lyme disease.
Unfortunately, the treatment was only available by flying to Germany and being treated by Dr. Woitzel. This could require a lengthy visit for numerous treatments in order to effectively rid the body of Lyme. Continue reading
The details of how embryonic stem cells work are scientifically intricate and at the same time, a miracle. I have been playing tug of war with myself ever since I spoke with the doctor and found out she would accept me as a patient. How can I know this is the right thing? What if for some reason, it didn’t help? To get some personal insight into Amy’s courage is taken from her personal blog: http://www.amybscher.com/Site/Journey_to_India.html Continue reading
On June 20, 2011, The New York Times published an article, “Once Rare, Infection by Tick Bites Spreads” by Laurie Tarkan; bravely presenting evidence that shows the alarming spread of Babesiosis (Babesia – a malaria-like parasite that attacks the red blood cells, and has been considered by many of us to be a common co-infection of Lyme disease.) Continue reading
Three Harmonies in Ashland, Oregon has opened their practice to include hard to treat and controversial diseases such as chronic Lyme disease, celiac disease, and Alzheimer’s. The clinic brings eastern and western medicine together using antibiotics and chinese herbs along with acupuncture, massage and stress reduction training.
Lyme disease is the result of a spirochetal infection (Boerrelia burgdorferi) transmitted to humans by deer ticks (mainly Ixodes scapularis, though a relative, I. pacificus is the carrier in the Western U.S.). The infection sometimes results in a serious disease pattern, most often characterized by progressively worsening arthralgia, though a central nervous system disorder or even a heart disorder may arise (1, 2, 3, 10). The disease is named for the town (Old Lyme, Connecticut) where, in 1975, a number of children presenting symptoms similar to juvenile rheumatoid arthritis were eventually found to have acquired this Boerrelia infection. Continue reading
Great news for chronic Lyme sufferers! A new test has been developed using blood cultures that is ACCURATE diagnosing Lyme disease (see http://lymediseaseresource.com/wordpress/new-diagnostic-tool-for-chronic-lyme-by-dr-burrascano/)
A new testing service from Advanced Laboratory Services evaluates the blood using darkfield microscropy after a ten to fourteen day incubation. If the patient is symptomatic and nothing shows up after two weeks incubation, the sample is placed in a two month incubation period (so far less than half of the samples require more than two weeks to show evidence of Borrelia. Continue reading
Lyme disease is the fastest growing and most prevalent vector-borne disease in North America and Europe and continues to infect people in every country spreading around the world with frightening speed and intensity.
As most people are aware, one of the biggest problems for the doctors trying to stop this epidemic is that there is not currently a 100% accurate diagnostic test available, and due to heated debate regarding the behavior of the bacteria once a human is infected and appropriate treatment, the sick continue to get sicker as the number of new cases climbs each year.
Although there are several notable projects addressing these problems, in Europe, a very unique project is underway that should give everyone hope for better diagnostic resources in the future. HILYSENS, a 2 year R+D project funded by the European Commission’s Seventh Framework Program (FP7) under Research for the Benefit of the SMEs was officially started on November 1st, 2010. The Kick-off Meeting was held in Barcelona on November 8th, hosted by AROMICS at the PCB and has continued to attract grants and donations to this important project. Continue reading
A group of clever researchers from Cornell have studied the anti-neural antibody reactivity in the brain of patients who have “Post Lyme Disease Syndrome” as compared to healthy people who have recovered from Lyme disease (and a control group of healthy people who have not had Lyme disease) in an effort to analyze the immune system abnormalities with respect to lingering symptoms, and mechanical evidence of possible permanent damage to the brain and/or clues to treatment in the future.
“Post Lyme Disease Syndrome” is the politically correct diagnosis for a patient suffering with Lyme symptoms who has been treated in accordance with the “IDSA Guidelines.” Continue reading
Bee Venom Therapy – or “BVT” is the therapeutic application of honeybee venom, through live bee stings, to bring relief and healing for various spinal, neural, joint, or musculo-skeletal ailments.
This treatment is not to be confused with oral products which have a very small therapeutic benefit, but actual venom which can also be administered by injection and homeopathic – with each treatment weaker than the one listed first. Continue reading
Lyme Disease sufferers need to be aware that having mercury poisoning and Lyme Disease at the same time can be a confusing, frustrating,scary experience.
We have ample evidence of the many ways in which we contract Lyme disease – and many ways which seem obvious but are very controversial.
Mercury poisoning is a different type of infection, and the methods for contracting mercury poisoning are incredibly varied.
Perhaps the top ways in which we are poisoned by mercury is from dental fillings Continue reading
I received an astounding email from a long-time LDR member last fall claiming that three (3) deer ticks had been found in her garage in Texas! I thought, “…just when you think things can’t get any stranger…” Well, my friend explained the circumstances and how she had cleverly thought to find a lab to mail the ticks to in order to find out what kind they were and if they had spirochetes. As luck would have it, the ticks made their way eventually to Dr. Esteve-Gassent. Imagine their surprise when the specimins weren’t lone star ticks after all! Continue reading
George Mason University (in Fairfield Virginia) has a motto – “Where Innovation is Tradition.”
During this radical technological revolution, it is inspiring to see this top-tier university keeping pace with the fierce competition in the medical field with a recent press release that is so exciting I almost hesitate to share it. Continue reading
Is Lyme disease fatal? Yes, of course it is.
Before you panic, just because you feel like you are dying right now doesn’t mean that your Lyme disease is going to put you in the grave anytime soon. However, Lyme disease can infect any and/or all of your organs – most dangerously your heart and brain. Continue reading
The University of Medicine and Dentistry of New Jersey (UMDNJ) collaborated with the Pacific Northwest National Laboratory (PNNL) to discover around 3,000 proteins in the spinal fluids of people who suffer from chronic fatigue syndrome and Lyme disease.
“We discovered that both diseases – chronic fatigue syndrome and post-treatment neurological Lyme disease – are central nervous system disorders,” said Steven Schutzer, professor of medicine at UMDNJ. “They have their own characteristic set of spinal fluid proteins that lets us distinguish one from the other.” Continue reading
According to the Center for Disease Control (CDC) Lyme disease is passed to humans by the bite of black-legged ticks (also known as deer ticks in the eastern United States) and western black-legged ticks infected with the bacterium Borrelia burgdorferi.
However, that is just not true. Continue reading
Antibiotics have been hailed as the super cure in their vaulted past, but over the years, as people have begun to die and suffer terrible side effects due to over-use, and still others who become sick from even a small amount of antibiotics, there is a new wave of bad publicity towards antibiotics, and rightly so when taken casually.
But for those of us with chronic Lyme disease, the risks involved with taking antibiotics – for years even- are absolutely worth it. Many will admit to thinking that death is not a punishment compared to the hell we live with each day. Continue reading
I can’t speak for you, but I know that I get so focused on Lyme disease that I forget about the millions of other people who suffer from unknown, poorly understood or misunderstood diseases – some of them very different but the pain and suffering is the same.
I am glad Heather agreed to share her story with us and hope that there are more of you out there who will have the corage to share your story. No judgement here – just love and support. Heather writes… Continue reading
There is no Lyme in Canada except for several strains of Borrelia burgdorferi, Borrelia miyamotoi,and even Borrelia Kurtenbachii.ABSTRACT Published in the American Society for Microbiology in AEM magazine May 2012 Issue.
Written by Nicolas Ogden for the State of Canada Zoonoses Division, Centre for Food-Borne, Environmental and Zoonotic Infectious Diseases, Public Health Agency of Canada. Continue reading