Best Test for Diagnosing Lyme

Best Test for Diagnosing Lyme

I am so far behind due to my move, but had to share the latest news from a friend who just received a positive Lyme test after the LONG 4 month wait for the Borrelia blood culture (available at Advanced Lab Services with a 94% accuracy). Continue reading

Posted in Chronic Lyme Disease, Coping with Lyme disease, Diagnosis of Lyme Disease, medical controversies | Tagged , , , , , , | 16 Comments

Effect of Delayed Lyme Diagnosis

Effect of Delayed Lyme Diagnosis

SAN FRANCISCO May 29 2015 /PRNewswire/ — A nationwide survey by LymeDisease.org confirms that current methods used to diagnose and treat Lyme disease are often faulty and inadequate.

The overwhelming response rate – over 6000 respondents within six weeks – demonstrates the urgency of this issue within the Lyme community. Continue reading

Posted in Chronic Lyme Disease, Diagnosis of Lyme Disease, Discussion, Lyme Disease News | Tagged , , | 2 Comments

Must Read: IDSA at it Again!

Must Read: IDSA at it Again!

The Poughkipsee Journal has done a wonderful job of following the plight of those of us with chronic Lyme disease and the irresponsible actions of the CDC and IDSA with their lack of action to change the antiquated 2 tier testing and make finding a treatment a priority. Continue reading

Posted in Chronic Lyme Disease, Discussion, Lyme Disease Articles, medical controversies | Tagged , , , | 1 Comment

Add Your Viewpoint About Chronic Lyme Disease

Add Your Viewpoint About Chronic Lyme Disease

Pamela Weintraub recently spoke out on the medical controversy surrounding chronic Lyme disease and how the people suffering unjustly need to be heard and treated.

A website called “Aeon Ideas” published the full article here: http://ideas.aeon.co/viewpoints/1877 and welcomes comments. Continue reading

Posted in Chronic Lyme Disease, Lyme Stories, medical controversies | Tagged , , , , | 4 Comments

Aloe Arborescens for Lyme Disease

Aloe Arborescens for Lyme Disease

Over the last few years I have received many questions about aloe arborescens. I knew I had written about it, but due to numerous computer crashes and the BIG HACK (two years ago my blog posts were hacked and deleted!) I could not seem to find the information.

So it was while I wasn’t looking that I found the original post and decided to update the medical references and repost for those of you who are at your wits end. Continue reading

Posted in Alternative Treatment Protocols, Chronic Lyme Disease, Coping with Lyme disease, Lyme Disease Treatment, Natural Treatments | Tagged , , , | Leave a comment

Tribute to Joseph Elone, Fatality of Lyme Disease

Tribute to Joseph Elone, Fatality of Lyme Disease

I try to keep this blog positive, with new information on the progress being made to better diagnose and treat Lyme disease.

This can be tough when the truth of such an escalating epidemic is hidden from the general populace which abandons the victims to years of emotional and physical pain, and yes, even death. Continue reading

Posted in Ask the Doctor, Coping with Lyme disease, Diagnosis of Lyme Disease, Lyme Disease News, Lyme Disease Symptoms | Tagged , , | 2 Comments

Do You Have PTSD or CTSD Due to Lyme Disease?

Do You Have PTSD or CTSD Due to Lyme Disease?

More and more people are moving out of the highly endemic areas of the East Coast and moving to places that have a lower incidence of Lyme disease.

I am moving too. After spending the last 30 years in Massachusetts and the ski country of Maine I am joining the retirees in the trek to Florida. I know there is plenty of Lyme in Florida but not the numbers further north, and the warm weather and sunshine is a required part of recovery for me. Continue reading

Posted in Ask the Doctor, Chronic Lyme Disease, Coping with Lyme disease, Lyme Disease Symptoms, Lyme Disease Treatment | Tagged , , , | Leave a comment

New Method to Diagnose Lyme After Tick Bite

New Method to Diagnose Lyme After Tick Bite

What do you do when you think you were bitten by a tick, but you don’t have the specimen to send in for evaluation? Do you wait for a bulls eye rash? NO! Not all species of Borrelia cause a bulls eye rash. Do you wait to see if you start to feel sick? NO! Not all people feel sick immediately after getting infected. That is why there have been deaths caused  by Lyme carditis among people who didn’t even know they had Lyme. Continue reading

Posted in Diagnosis of Lyme Disease, Lyme Disease News, Research and Development | Tagged , , , | 6 Comments

How to Succeed with Cowden Protocol

How to Succeed with Cowden Protocol

There have been so many people who have successfully recovered using the Cowden protocol, and yet there are many who do not. Why does it seem to work for some and not others?

I asked Dr. Cowden that question, and his answer was a pleasant surprise. Continue reading

Posted in Alternative Treatment Protocols, Biofilm, Chronic Lyme Disease, Coping with Lyme disease, Natural Treatments | Tagged , , , , | 5 Comments

What Happened to Dr. MacDonald?

What Happened to Dr. MacDonald?

I mistakenly reported that Dr. Alan MacDonald had been diagnosed with Alzheimer’s – a horrific irony that saddened all of the Lyme community.

I am happy to say that although he was actually diagnosed with fronto-temporal dementia (and was not given long to live), he miraculously recovered and is back to his research and helping the medical community unravel the mysteries of Borrelia around the world. Continue reading

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Another Star Fights Lyme Disease: Singer Avril Lavigne

Another Star Fights Lyme Disease: Singer Avril Lavigne

The rich and famous get the same run around as we do according to the recent press release and interview by People Magazine with Rock Star Avril Lavigne.

Watch News Story here: http://abcnews.go.com/Health/avril-lavigne-lyme-disease-questions-answered/story?id=30046495

[NOTE: Things on video that are incorrect:

  • You can contract Lyme from a tick in less than 36 hours.
  • Lyme is in all 50 states and in every country on the planet.
  • You don’t always get a bulls eye rash.
  • Early antibiotic treatments may not cure if you aren’t given enough for the correct length of time which may be longer than many doctors prescribe. ]

According to People Magazine:

When Avril Lavigne went to Las Vegas with a couple girlfriends last October to celebrate the milestone, she felt like doing anything but partying – in fact, she’d been feeling terrible for several months, but the doctors she’d seen couldn’t pinpoint exactly what was wrong with her.

“I could barely eat, and when we went to the pool, I had to leave and go lie in bed,” she tells PEOPLE in this week’s exclusive cover story. ” My friends asked, ‘What’s wrong?’ I didn’t know.”

Shortly after, following months of feeling lethargic and lightheaded, the normally energetic singer got her diagnosis: she had a severe case of Lyme disease.

“I had no idea a bug bite could do this,” says Lavigne, who believes she was bit by a tick sometime last spring. ” I was bedridden for five months.”

The Canadian singer has been recuperating at her home in Ontario, where she spends time with family, watches movies and keeps up with fans through social media.

“I felt like I couldn’t breathe, I couldn’t talk and I couldn’t move,” she says. “I thought I was dying.”

Her mom moved in to help take care of her, while her husband Chad Kroeger, 40, stepped in when he could during breaks in his tour with Nickelback.

“There were definitely times I couldn’t shower for a full week because I could barely stand,” she says. “It felt like having all your life sucked out of you.”

And while she had her share of dark moments, one thing that helped her get through the long days was knowing her fans were out there, waiting for her to get better.

Avril feels about 80% recovered from getting better rest, meditation, diet, exercise and she is also on antibiotics.

Never feel alone in your struggle – Avril is hardly a hypochondriac and yet she was treated the same way many of us were by the very doctors we counted on to help us.

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Can You Find True or False in This Post on Chronic Lyme MSIDS?

Can You Find True or False in This Post on Chronic Lyme MSIDS?

 There are so many theories that are stated as facts by medical doctors or journalists who don’t take the time to read the pathology from the scientists (medical and licensed professionals).  

I surmise that the medical doctors state what fits with their belief system and what they have been taught in medical school. They are just too busy following their profession to dig deeper.

So, what do you think? Continue reading

Posted in Chronic Lyme Disease, Coping with Lyme disease, Diagnosis of Lyme Disease, Discussion, Lyme Disease News, Lyme Disease Symptoms | Tagged , , , | 1 Comment

Please help Lyme Doctor Yang in Dan Diego Who is Being Targeted

Please help Lyme Doctor Yang in Dan Diego Who is Being Targeted

This letter came to me from a subscriber in San Diego – this is why we need protective legislation for doctors who actually care about getting their patients well:

From: Dr. Yang’s Family Care … in the spirit of healing…

March 22, 2015

To all my dear friends, patients and supporters, please help as my clinic (Dr. Yang’s Family Clinic) will close Thurs April 16th at 5 pm unless we can raise $50,000. Continue reading

Posted in Ask the Doctor, Chronic Lyme Disease, Discussion, General, Lyme Disease Treatment, medical controversies | Tagged , , | 3 Comments

Breakthrough for New Treatment for Chronic Lyme Disease

Breakthrough for New Treatment for Chronic Lyme Disease

Lakewood-Amedex Inc., a leading developer of novel anti-infective pharmaceuticals, announced today that it has expanded upon a research collaboration with Dr. Leona Gilbert at the Department of Biological and Environmental Sciences of the University of Jyvaskyla, Finland to further characterize the activity of bisphosphocins™ against Borrelia burgdorferi. Continue reading

Posted in Chronic Lyme Disease, Lyme Disease News, Research and Development | Tagged , , | 4 Comments

Please Sign Petition to President Regarding Chronic Lyme Disease

Please Sign Petition to President Regarding Chronic Lyme Disease

The petition is as follows:

“Chronic Lyme Disease has reached epidemic proportions. It is the great imitator, fooling doctors into treating patients for other diseases such as Chronic Fatigue, MS, Heart Disease, Rheumatoid Arthritis, Psychiatric Illness, ALS, etc. Yet, according to the CDC, it “does not exist”. Continue reading

Posted in Chronic Lyme Disease, General, medical controversies | Tagged , | 8 Comments

Another Case of Unknown Lyme Disease Causing Life Threatening Stroke

Another Case of Unknown Lyme Disease Causing Life Threatening Stroke

Typically these cases never hit the news.

More, and more we are hearing news reports of people who have no idea that they are carrying infectious Lyme disease, perhaps ignoring subtle symptoms of fatigue or joint pain that resolves itself until a life threatening event sends the victim to a hospital emergency room. Continue reading

Posted in Chronic Lyme Disease, Coping with Lyme disease, Diagnosis of Lyme Disease, Lyme Disease News, Lyme Disease Symptoms, Neurological Lyme disease | Tagged , , | Leave a comment

California Birds Loaded with Lyme Disease

California Birds Loaded with Lyme Disease

Something doesn’t add up.

We know birds have been carrying ticks all over the world and spreading Borrelia that way. But now, according to a study just released by the University of California at Berkeley, 623 birds representing 53 species yielded 284 I. pacificus larvae and nymphs, however, the species of Borrelia in the birds did not match the species in the nymphs. Continue reading

Posted in Chronic Lyme Disease, Lyme Disease and Ticks, Lyme Disease News, Research and Development | Tagged , , | Leave a comment

Human-to-Human Transmission of Fatal Tick Virus Confirmed

Human-to-Human Transmission of Fatal Tick Virus Confirmed

Korea is reporting a higher than normal rate of infection of the tick virus, known to be fatal from tick bites.

However, for the virus to pass from human to human indicates a frightening change in the virus which will hopefully not indicate a rising trend worldwide. Continue reading

Posted in Discussion, Lyme Coinfections, Lyme Disease and Ticks, Lyme Disease Symptoms, Research and Development | Tagged , , | Leave a comment

Moving Forward With Lyme Disease

Moving Forward With Lyme Disease

I’ve been trying to write my Lyme disease story for days but it just hasn’t felt right.  I just realized that it’s because I don’t really want to go back there.  It seems like a distant, blurry dream and I’m ok with that. 

I want to move forward.  Continue reading

Posted in Alternative Treatment Protocols, Chronic Lyme Disease, Coping with Lyme disease, Lyme Disease Treatment, Lyme Stories, Natural Treatments | Tagged , , | 1 Comment

Bryan Rosner Hits it Big With New Book

Bryan Rosner Hits it Big With New Book

For those of you like me who first heard of Bryan when reading his book on Rife machines, you may not recognize the tone or scope of this latest book.

I was surprised that he lauds antibiotics (which was vilified in his first book), but felt that it shows his intellectual honesty along with the close attention he gives to ongoing research and treatment success from the Lyme experts. Continue reading

Posted in Alternative Treatment Protocols, Chronic Lyme Disease, Coping with Lyme disease, Lyme Disease Treatment, Natural Treatments, Neurological Lyme disease, Pain | Tagged , , | Leave a comment

Global Warming Affects Increase in Lyme Disease Especially in Northeast

Global Warming Affects Increase in Lyme Disease Especially in Northeast

According to Outbreak News Today, an article by Harold W. Manter from the Laboratory of Parasitology at the University of Nebraska-Lincoln, and  affiliated zoologist, Daniel Brooks warns that humans can expect more illnesses like Lyme disease to emerge in the future, as climate change shifts habitats and brings wildlife, crops, livestock, and humans into contact with pathogens to which they are susceptible but to which they have never been exposed. Continue reading

Posted in Coping with Lyme disease, Lyme Disease and Ticks, Lyme Disease News, Lyme Disease Symptoms | Tagged , | 1 Comment

Desloratadine, a Common Antihistamine May Treat Lyme Disease

Desloratadine, a Common Antihistamine May Treat Lyme Disease

It is always good news when researchers find something that discourages the stealthy and seemingly incurable Lyme disease.

A recent medical report was just released on February 10, 2015 by  Jayakumar Rajadas, PhD, director of the Biomaterials and Advanced Drug Delivery Lab at Stanford University School of Medicine along with a team of researchers (see report at link in Sources at Dove Press). Continue reading

Posted in Alternative Treatment Protocols, Lyme Disease Treatment, Research and Development | Tagged , , , | 4 Comments

People Are Dying From Lyme Who Don’t Know They Have It

People Are Dying From Lyme Who Don't Know They Have It

Yes, it is true. 

Three people between the ages of 26 and 38 died from Lyme induced heart attacks between November 2012 and July of 2013 in New England (NY, CT and MA) who didn’t even know they had Lyme disease. Continue reading

Posted in Chronic Lyme Disease, Diagnosis of Lyme Disease, Lyme Disease News, Lyme Disease Symptoms, Lyme Stories, medical controversies | Tagged , , , , | 2 Comments

Yolanda Foster Fights For Her Life and Sanity

Yolanda Foster Fights For Her Life and Sanity

For those of us who have gone through the terrifying loss of mental capacity, pain and weakness that the Hollywood star, Yolanda Foster is now going through, we all share in her distress and wish her a speedy recovery.

Unfortunately, there is no speedy recovery from Lyme disease. Continue reading

Posted in Chronic Lyme Disease, Coping with Lyme disease, Diagnosis of Lyme Disease, Discussion, Lyme Disease News, Lyme Disease Symptoms | Tagged , , , | 3 Comments