A Kansas farmer, John Seested, age 68, died in June, 2014 after testing negative for all tick-borne illnesses, The Fort Scott Tribune reported. Still, tick-borne illnesses was listed among three causes of death on his death certificate. He was 68. Continue reading
What is a Lyme disease “persister”?
Mounting evidence that shows Borrelia (Lyme disease) to remain active and continue to cause painful and debilitating symptoms even after antibiotic treatment has been given the name PTLDS or Post Treatment Lyme Disease Syndrome in a strange determination to avoid the term “Chronic Lyme Disease.” Continue reading
The State of New York has gotten something right.
A new law has been passed in New York protecting Lyme doctors from persecution thanks to the New York State Legislature, strong Lyme activism under Ellen Lubarsky, NY Coalition and Chair of New York City Lyme Disease Support Group and Jill Auerbach, Chair of the Hudson Valley Lyme Disease Association (along with many other Lyme support groups throughout New York State, New England and across the country,) and especially the state’s Governor Cuomo who ultimately signed the bill into law.
Yes, that is a picture of Dr. Alan Steere, one of the three doctors at Yale who discovered Lyme back in 1979.
So much has happened in the last three decades, but it took less than 10 years for researchers to Continue reading
Over the last few years I have received many questions about aloe arborescens. I knew I had written about it, but due to numerous computer crashes and the BIG HACK (two years ago my blog posts were hacked and deleted!) I could not seem to find the information.
So it was while I wasn’t looking that I found the original post and decided to update the medical references and repost for those of you who are at your wits end. Continue reading
Momentum is slowly changing as more and more esteemed medical doctors stand up for the dilemma patients struggle with to find compassionate treatment for their chronic Lyme disease, or as it is now becoming known as MSIDS (multiple symptom infectious disease syndrome.)
Borrelia, the family of bacteria that includes over 100 types in the US and 300 worldwide that we are aware of, can not be considered on it’s own due to the interaction of Lyme disease with the many co-infections. However, Continue reading
Until early 2012 there was no reliable diagnostic test beyond what is mentioned above. However as of 8/1/2012, a blood culture boasting 99% accuracy (later adjusted to 94% based on comparison testing ) was developed with the assistance of Dr. Burrascano which is accurate in all cases unless there is contamination. The test is a blood culture produced and run by Advanced Lab Services (http://www.advanced-lab.com ) . Continue reading
Can you even tell what kind of tick is in the picture? It is a deer tick (larvae) and it is already infectious. Yes, it has been recently discovered that ticks become infected by their mother. Also, be aware that you don’t need a bull’s eye rash to confirm Lyme disease. And it doesn’t need to be a deer tick either.
There are only four out of twenty species studied from Shelter Island that can leave the skin and infect the rest of the body. That means Continue reading
In 2003 the excitement was contagious. For so many thousands of people suffering with chronic Lyme disease there was finally hope on the horizon.
Although the Lyme Research Center would not open until 2007, Columbia University Magazine wrote that year: “…Time for Lyme will continue to raise funds to establish the Columbia University Lyme Disease Research Center, the first Lyme disease research center in the United States… U.S. Sen. Christopher J. Dodd, D-Conn., will accept the Time for Lyme Outstanding Service Award for his advocacy of national Lyme disease legislation. Continue reading
Back in 2010, Yale reported the increasing evidence that pointed to migratory birds spreading Lyme disease not just between states but around the world.
A team led by School of Public Health researcher Maria Diuk-Wasser analyzed studies on 71 bird species that host the black legged tick, the main carrier of Lyme disease. Continue reading
The discoverer of the spirochete that causes Lyme disease passed away yesterday, November 17, 2014.
In 1982, researcher Willy Burgdorfer, a researcher and expert in spirochetal diseases at Rocky Mountain Laboratories (RML) in Hamilton, Montana, along with his colleague Alan Barbour, M.D. from the University of Texas Health Science Center. The scientists had been studying a large number of ticks in an effort to determine the cause of Rocky Mountain Spotted Fever. Continue reading
At the root of Lyme patients’ struggle for care is a heated debate within the medical community over how best to diagnose Lyme disease, the reliability of laboratory tests and the major difference between the definitions of chronic Lyme disease versus post-treatment Lyme disease syndrome (PTLDS).
Chronic Lyme disease assumes an active disease which continues to cause symptoms and PTLDS assumes a disease that has been treated Continue reading
Research gathered by a group of international scientists was presented at the annual Western Regional Meeting of the American Federation for Medical Research.
The study was conducted by an esteemed group of researchers and the abstract was published in the January 2014 issue of the Journal of Investigative Medicine. The following was reported by Online PR News following a presentation made in Carmel, California. Continue reading
I just purchased a copy the sequel to “Under Our Skin” called “From Horror to Hope: Emergence”, and encourage you to keep your eye out for showings in your neighborhood or get a copy yourself. Continue reading
Female ticks produce over 3000 nymphs that are amongst the most infectious type of tick, and almost impossible to see.
Imagine taking a jar of pepper and throwing it up in the air on a windy day. Think about that when you are outside anywhere during this autumn and the wind picks up. Continue reading
Lately, most people either know someone personally who is suffering with Lyme disease, or they know someone who is close to someone suffering with Lyme disease.
Unfortunately, even though the Lyme disease Epidemic (better referred to as Borrelia Epidemic) continues to snowball, there are no real numbers that can be tallied. Continue reading
Four months ago, a 44-year-old woman was referred to me by her audiologist and ENT for acute deafness of the right ear. She is a healthy woman without any past medical history and was not on any medication. Her otolaryngologist (ENT) could not find any physical reason for the patient’s acute unilateral deafness, including a negative CAT scan. She was being referred to me to determine if there was an infection etiology for her deafness.
The tide has turned and a groundswell of support is forming for people who are too sick to fight for themselves.
The protest which was announced in the New York Times Article recently was a great success and apparently caught the attention of the Fox News Anchor Greta Van Susteren. Continue reading
The FDA wants to move forward with regulations to restrict cutting edge laboratory developed tests (LDTs), which have not required FDA approval before, requiring FDA approval for all LDTs and effectively blocking critical innovation.
Why would the FDA should restrict any cutting edge lab test when the medical marketplace will drive the success of any test based on its success rate? In this case the restrictions are very far reaching. Continue reading
Are you struggling with chronic Lyme disease? (Oops, I forgot, there is no such thing as chronic Lyme disease – just ask Dr. Alan Steere) Well, instead of the mass media outlets ignoring chronic Lyme disease, they are now requesting stories. Continue reading
This groundbreaking interview is well worth watching as it makes some claims that those of us in the Lyme community have believed for a long time – and it is GREAT to hear it on mainstream news finally, such as a possible one million new cases per year – yes, that is still probably an understated number but much closer than 20,000 or even 200,000 per year.
I also love Ms. Tan’s definition of healthy: “…if you can do all the things you want to do.” Fo many that should be inspiring and for others something to shoot for.
I still believe in my heart we can get rid of Borrelia completely by removing all the hiding places (parasites, biofilms, etc); having the correct “killing protocols” that work for our unique physical make-up (including immune system), co-infections with correct length of treatment; correct fitness (enough sleep, proper diet); and finally nutritional supplements for symptoms, recovery, strength and energy as well as general health.
Chagas, or the “Kissing Bug” appears to be on the rise. For those of us with chronic Lyme disease, which many consider incurable once it has been in the body for a certain length of time, Chagas is also incurable unless it is treated at the onset like Borrelia burgdorferi. Unlike, Bb, Chagas is a parasite that enters the host after the bug bite is itched – usually on the face (which is why it is called the “Kissing Bug”) but the fatalities are alarming. Continue reading
Heather was in the midst of a severe relapse in her long fight with neurological Lyme disease.
I published her plea for help along with many others in April of this year (see http://neuro-lyme.com/videoblog/heather-needs-our-help/).
She recently took her own life to escape her excruciating mental and physical pain. She will be missed.
When you suffer for days, weeks, months or even years…with pain that will not stop – or with fatigue that is so profound, you feel like a corpse (not a walking corpse because you are so weak you can barely struggle to the bathroom – no, it is a prone corpse).
You think about suicide. Let’s face it, we all have thought about it when the pain and suffering overwhelms us, and we feel there is no one who cares or understands. Friends try to relate Continue reading
Based on the science of a new vaccine for malaria, there is now hope that a vaccine could be developed for Babesia, a common co-infection of Lyme disease.
Dr. Richard Horowitz, a Lyme specialist in New York recently posted: “A study recently published in the journal Science may hold the key for both the prevention and treatment of Babesiosis. Continue reading